We are going to double your dose of steroids, loosing weight might help too.
Ass.
That is all.
Saturday, August 31, 2013
Breakfast of champions
Yes, I take this many pills every morning. And don't you dare even try to tell me that these are toxins and they are making me sick. They are keeping me alive.
Friday, August 16, 2013
OMG shoes.
Why is it that when I have something I need to do I feel like crap? I've been having a bit of a flare for the past few weeks (stress induced? probably). Classes start monday, where we have to be dressed in business clothes. I have a cute dress I'd like to wear but it is a heels kinda dress, and heels do not belong on the feet of the clumsiest girl around. Oh well "practical" (ugly) shoes it is. That's my rant for the day, I'd rather be wearing the oh-so-sweet aqua blue peep toes sitting in my closet but I will wear the safe ones.
Thursday, August 15, 2013
All meteorologist should be replaced by EDS patients
So whenever a high pressure system rolls into town, you can pretty much bet me having a sucky day. I woke up today, dragged myself out of bed, did what I had to do and then I promptly resumed making a permanent indention of myself on this dang thing. It feels like you can't possibly get enough oxygen and your chest hurts whenever you breathe and you are generally worn out. I'm not sure what it is technically, but I can tell you there is absolutely NOT anxiety related and it is most definitely related to the high pressure systems bringing in storms. It happens ever time there is a storm and it suuuuuuucks. it goes away after the storm and some rest. I'm not sure if it's the POTS or arthritic type pain due to years of costrochondirits but I'm going to go to bed at 9pm tonight. Which is unheard of for this little nocturnal monster. Goodnight.
Saturday, August 10, 2013
What is Ehler's Danlos?
Ehler's Danlos is a genetic condition that effects the collagen production. It can effect your joints, skin, blood vessels and nervous system. Every case is different, but here are some the things I personally struggle with.
POTS (Postural Orthostatic Tachycardia Syndrome): when I stand up, my blood pools in my feet and legs, causing me to faint or feel dizzy.
Joint hypermobility: I can do weird things with my joints, and they frequently dislocate.
Bruising: the current count is 26. I know how 1 of them happened. I just bruise for no good reason.
Transparent, fragile skin: you can see all my veins!
Anyhow, enough about that, I just wanted to give you an explanation of that EDS is. If you want to learn more you can go here, or ask me :)
http://www.ncbi.nlm.nih.gov/books/NBK1244/
POTS (Postural Orthostatic Tachycardia Syndrome): when I stand up, my blood pools in my feet and legs, causing me to faint or feel dizzy.
Joint hypermobility: I can do weird things with my joints, and they frequently dislocate.
Bruising: the current count is 26. I know how 1 of them happened. I just bruise for no good reason.
Transparent, fragile skin: you can see all my veins!
Anyhow, enough about that, I just wanted to give you an explanation of that EDS is. If you want to learn more you can go here, or ask me :)
http://www.ncbi.nlm.nih.gov/books/NBK1244/
Bruises
Part of Ehlers Danlos is skin fragility. We have no idea where the bruises came from, but they are always there. No, we are not abused by anything other than genetics. I got curious and counted my bruises today, I have 26. I only know where one of them came from. This one is on my anterior thigh, just popped up.
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